Look who came to visit. Last Tuesday Russ called me at 5:15 PM and said he was on his way home. Already?? He also said that he had a surprise for me. When he walked in the door - look who he brought with him for the night - Konley!
Konley is wanting to spend some more time with us, so we have designated Tuesday night as "Konley Night". This past Tuesday we had spaghetti, watched the movie "Elf" and had "sticky popcorn." It was a good evening together.
I know many of you are wondering how Konley is doing. His mobility continues to decrease on a weekly basis. He has mobility in arms and able to do some daily activities such as feed himself, plays video games and get in and out of a vehicle. He is able to stand with assistance. He speech is a little slurred. Fortunately, he doesn't seem to have pain and has very few headaches. Hospice continues to come out several times a week to check on him and they have suggested to start him on oxygen only at nighttime. He seems to be okay with this. As you notice in pictures weight gain is a constant battle with the steroids but they help with the swelling of the tumor (which is the lesser of the two evils - you have to decide). He does have moments when he doesn't understand why this is happening and he wants to live. These are very difficult moments for Russ, but they talk about the issue and work through it together and move on.
Positives - Konley still wants to be involved in activities and tries very hard to participate (as you can see in my fall party post), London makes him laugh when she tries to be our helper when we are doing laundry or cleaning the kitchen, continues to have a good attitude, didn't cry for 6 days, and looks to Jesus to be his strength during those tough moments.
It isn't easy and there are good days/moments and some really crappy ones. We are so thankful for our supportive family and friends near and far. Thank you so much for keeping us in your prayers - they are much appreciated.

2 comments:
Love you guys.
what a great surprise! russ is full of good ideas. :) i bet london was soooo happy it was Konley night.
and she is walking now?!!! big girl. this year went so quick. wasn't she just born all teeny tiny? how is she walking and having birthday parties?
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